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Brains Get Famous Advances International Brain Tumour Research
Studying brain tumour survivors, tumour behaviour, RNA data, and patients’ everyday lives to help advance international research.
At Brains Get Famous, we are conducting an international research study focused on brain tumour survivors, the long-term side effects they experience, and the behaviour of their tumours. We place particular emphasis on understanding patients' everyday lives at every level, recognising that their experiences provide valuable knowledge for future medical and scientific research.
As part of this initiative, we collect RNA data from patients around the world, facilitating research based on Real-World Evidence (RWE) derived from statistical analysis of real patient data. By combining molecular information with patients' lived experiences, our aim is to contribute to a better understanding of brain tumours and their long-term impact.
We would like to express our sincere gratitude to Dr. José Luis de Palma for the valuable information he has provided regarding healthcare protocols, as well as to the volunteer glioblastoma patients, including Steph and Ariana, whose collaboration is essential to this project.
These studies, which began in 2021, also collect information about pre-diagnosis symptoms from Brains Get Famous brain tumour patients who have sadly passed away. Their testimonies, together with the invaluable information generously provided by their families, represent an essential contribution to advancing international research into the behaviour of this disease.
Every patient story, every experience, and every piece of information collected helps us move one step closer to improving knowledge, supporting future research, and ultimately improving the lives of people affected by brain tumours worldwide.






